The PSP Association UK is a patient advocacy organization dedicated to supporting people affected by Progressive Supranuclear Palsy (PSP) and Corticobasal Syndrome (CBS) in the United Kingdom.
| Attribute |
Details |
| Organization Name |
PSP Association UK |
| Founded |
1994 |
| Headquarters |
London, UK |
| Focus |
Patient support, research funding, awareness |
| Related Conditions |
PSP, CBS |
The PSP Association UK aims to:
- Provide support and information to people living with PSP and CBS
- Fund research into causes, treatments, and ultimately a cure
- Raise awareness of PSP and CBS among healthcare professionals and the public
- Advocate for better care and services for patients
- Information resources for patients and caregivers
- Support groups across the UK
- Helpline services
- Care guides and practical advice
The PSP Association UK funds research into:
- Understanding the causes of PSP and CBS
- Developing new treatments and therapies
- Improving diagnosis
- Quality of life improvements
¶ Awareness and Advocacy
- Campaigns to improve understanding of PSP
- Working with healthcare providers to improve diagnosis and care
- Policy advocacy for rare disease research
The PSP Association UK is the UK-based organization, while CurePSP is the US-based organization. Both organizations collaborate internationally on PSP research and awareness.