CurePSP (formerly known as the PSP Association) is the premier nonprofit organization dedicated to advancing research, patient care, and public awareness for progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and related 4R-tauopathies. Founded to address the needs of patients and families affected by these rare but devastating neurodegenerative disorders, CurePSP has become the leading voice for the PSP and CBD community worldwide.
CurePSP was established as the PSP Association in the United Kingdom, founded by families affected by PSP who recognized the need for a dedicated organization to advance research and support patients. The organization has since expanded its scope to become a global force in tauopathy research.
| Year | Milestone |
|---|---|
| 1995 | PSP Association founded in UK |
| 2007 | Expansion to international research collaboration |
| 2015 | rebranding to CurePSP |
| 2020 | International patient registry launched |
| 2023 | Global network of affiliate organizations |
CurePSP's mission encompasses:
CurePSP provides competitive research grants through its scientific review process:
| Program | Focus Area | Typical Award |
|---|---|---|
| Discovery Grants | Novel hypotheses, pilot data | $50,000-$100,000 |
| Clinical Awards | Patient-oriented research | $75,000-$150,000 |
| Postdoctoral Fellowships | Early career researchers | $50,000/year |
| Center of Excellence | Multi-investigator teams | $250,000+ |
The CurePSP International Patient Registry represents a major initiative to accelerate research:
CurePSP coordinates with partner organizations worldwide:
| Region | Organization |
|---|---|
| United States | CurePSP USA |
| United Kingdom | PSP Association UK |
| Canada | PSP Canada |
| Australia | PSP & CBD Foundation Australia |
| Europe | PSP Europe Network |
CurePSP works with leading research centers:
CurePSP is governed by a board including:
Leading researchers in tauopathy biology and clinical care guide CurePSP's research strategy:
Annual scientific and family conferences bring together:
CurePSP advocates for:
CurePSP invests substantial resources in research: